Jessie has a diagnosis of Rett syndrome. Rett syndrome is a rare genetic neurological and developmental disorder that affects the way the brain develops, causing a progressive inability to use muscles for eye and body movements and speech. It occurs almost exclusively in girls. Most babies with Rett syndrome seem to develop normally at first, but after about 6 months of age, they lose skills they previously had — such as the ability to crawl, walk, communicate or use their hands.
Jessie is not able to stand or walk independently and is not able to transfer herself from her wheelchair to a car seat. It was becoming very difficult for her parents to lift her into the vehicle. Thanks to your generous donations, the Children’s Ability Fund was able to contribute $10,000 toward the cost of this power seat lifter for Jessie and her family.
“We are able to travel more places because the transfer in and out of the vehicle is now painless and much easier than having to use physical strength. Thank you very, very much! We are very, very happy!”